Resources

Welcome to the NewSTEPs resource library! This exciting new tool incorporates all resources archived on the NewSTEPs website, which can be filtered below by disorder, type and topic. Submissions of additional resources are encouraged and accepted as the library continues to grow. Please direct any submissions to Sari Edelman.

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Severe Combined Immunodeficiency (SCID)

Policy Statements

APHL Position Statements

Policy Statements

APHL Policy Statement on Quality Assurance in the Newborn Screening (NBS) Laboratory

Policy Statements

APHL Policy Statement on Newborn Screening (NBS) Contingency Planning

Policy Statements

APHL Policy Statement on Newborn Screening (NBS) Residual Dried Blood Spot (DBS) Specimens

Data Visualizations

Monthly QI5c.i: Time from receipt to reporting time critical results

Policy Statements

APHL Policy Statement on Newborn Screening (NBS) Follow-Up

Webinars

New Disorders Implementation Project Webinar - Nebraska and Ohio

Educational Tools

California Inadequate Newborn Screening Specimens: Handout and Poster

Webinars

Short Term Follow Up Webinar: Collaborating with Families & Providers in Community Birth Settings

Data Visualizations

Annual QI5a.i: Time from birth to specimen collection

Data Visualizations

Monthly QI5a.i: Time from birth to specimen collection

Data Visualizations

Annual QI5b.i: Time from specimen collection to receipt at the laboratory