Resources

Welcome to the NewSTEPs resource library! This tool incorporates all resources archived on the NewSTEPs website, which can be filtered below by disorder, type and topic. Submissions of additional resources are encouraged and accepted as the library continues to grow. Please direct any submissions to Sari Edelman.

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Severe Combined Immunodeficiency (SCID)

All Resources

Policy Statements

APHL Position Statements

Policy Statements

APHL Policy Statement on Quality Assurance in the Newborn Screening (NBS) Laboratory

Data Visualizations

QI5d.ii: Time from birth to reporting non-time critical results

Data Visualizations

QI5d.iii: Time from birth to reporting all results

Policy Statements

APHL Policy Statement on Newborn Screening (NBS) Contingency Planning

Toolkit

Newborn Screening Timeliness Simulator

Educational Tools

Flyer: Newborn screening is more than a test

Publications

Leveraging Evidence-Based Public Policy and Advocacy to Advance Newborn Screening in California

Educational Tools

Kansas - Baby's First Week

Webinars

SCID National Quarterly Webinar

Publications

Analyzing Patterns in NewSTEPs Site Review Recommendations: Practical Applications for Newborn Screening Programs

Publications

LIS Guidebook