The newborn screening (NBS) cystic fibrosis (CF) quality improvement and timeliness meeting in June 2016 focused on collaborative presentations on improving the timeliness of screening, follow-up, diagnosis, and referral to appropriate care. Participants discussed challenges and barriers, and strategies for improvement and outcomes for infants with CF. 

Presentations:

• Avoiding Deadly Delays: This presentation is on avoiding deadly delays in NBS.
• Identifying Problems in NBS: Root Cause Analysis: This presentation is on identifying problems in NBS and their root causes.
• Cystic Fibrosis NBS Quality Improvement & Timeliness: This presentation is on CF timeliness in NBS.
• Iowa Experience: This presentation is on Iowa's efforts to improve timeliness in NBS.
• Improving Timeliness in NBS Health Information Technology in Texas: This presentation is on Health Information Technologies (HIT) in the Texas NBS.
• Confirmatory Testing Improvements: This presentation highlights the importance of timeliness in CF diagnosis and reviews recommended sweat collection and testing methods.
• Data Challenges: This presentation on CF data challenges is from the CF Newborn Screening (NBS) Quality Improvement & Timeliness meeting.
• Screening for Cystic Fibrosis in Minnesota: This presentation on CF screening in Minnesota is from the CF Newborn Screening (NBS) Quality Improvement & Timeliness meeting.
• Cystic Fibrosis: A Clinical Perspective: This presentation is on a clinical perspective of CF screening in Minnesota.
• Algorithm Notes: These notes are from the breakout session on CF algorithm challenges and goals.