Newborn Screening and Recommended Uniform Screening Panel (RUSP) Alignment
The Association of Public Health Laboratories (APHL) Newborn Screening Technical assistance and Evaluation Program (NewSTEPs) New Disorders Workgroup hosted a discussion on RUSP alignment. During this webinar, state newborn screening (NBS) programs shared their experiences with the RUSP alignment process and discussed what worked, the challenges encountered, and how to ensure this process is mutually beneficial to NBS programs and advocates. The Every Life Foundation also presented to discuss the organization’s role in the RUSP alignment legislative process and how they engage with state NBS programs.
· Kimberly Noble Piper, RN, BS, CPH, CPHG , Executive Officer, Center for Congenital and Inherited Disorders, State Genetics Coordinator, Iowa Department of Public Health
· Scott Shone, PhD, HCLD, Director, North Carolina State Laboratory of Public Health
· Dylan Simon, Director of Policy, Every Life Foundation
Link to archived webinar for PACE credit: Newborn Screening & Recommended Uniform Screening Panel (RUSP) Alignment (588-614-22) (aphl.org)