SCID In-Person Meeting Summary August, 2017
This document includes brief summaries of each of the presentations from the National Severe Combined Immunodeficiency (SCID) meeting held in August, 2017, as well as links to many of the presentations. The purpose of this meeting was to convene SCID newborn screening stakeholders and to facilitate the strengthening of relationships between the SCID clinical network and the newborn screening community within each state. During this meeting participants shared solutions for SCID newborn screening implementation in order to support ongoing quality practices, quality data collection and interpretation across the United States. Participants included over 100 representatives from state newborn screening laboratories, follow-up programs, and clinicians, representing 38 states.