NewSTEPs New Disorders Readiness Scale and Resources

Date: June 5, 2019


  • New Disorders Readiness Scale - The NewSTEPs New Disorder Readiness Scale is intended to track progress toward full implementation of screening for a new disorder, as well as to provide data to NewSTEPs on how long the different phases and milestones of the implementation process take, and how these timelines vary by disorder, program and other variables. The comprehensive tool is used for past data collection efforts. If you would like to complete the Readiness Scale, please contact Kshea Hale at for access to the online version.
  • Guide for the NewSTEPs New Disorders Readiness Scale 
  • New Disorders Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) Presentation - Dr. Yvonne Kellar-Guenther presented data collected through the Readiness Tool. Her presentation includes an overview of data around how long it takes to implement statewide screening for a new disorder as well facilitators and challenges associated with statewide screening.
  • New Disorders Implementation Checklist - This checklist was developed by the New Disorders Workgroup to assist NBS programs as they prepare to screen for a new disorder. It covers the steps and factors to consider when pursuing universal implementation. The tool is intended to serve as a general implementation guide. States should modify the checklist to ensure that it is suitable for their program.
  • New Disorders Readiness Tool - This is the printable version of the online survey tool used for current and future data collection. Please contact NewSTEPs staff to request access.