Newborn Screening (NBS) for Adrenoleukodystrophy (ALD) Symposium Talks
The New York - Mid-Atlanitc Consortium (NYMAC) has posted the following Newborn Screening (NBS) for Adrenoleukodystrophy (ALD) Symposium Talks on the NYMAC website: Diagnostic Testing and History of Adrenoleukodystrophy - Ann Moser, BA; ALD Management and Treatment - Gerald Raymond, MD; Genetic Counseling Considerations of ALD Newborn Screening and Differential Diagnoses - Beth Vogel; New York State ALD Laboratory Protocol - Joeseph Orsini, PhD; Protocol for Diagnosis and Management Guidelines - Sarah Bradley, MS, CGC; Parent and Patient Perspectives - Spenser Barsh ; Status of ALD Screening in New Jersey - Scott Shone, PhD; Parent and Patient Perspectives - Elisa Seeger; Long-term Follow-up and Educational Materials Group Discussion - Beth Vogel, MS, CGC; Review NYS ALD Outcomes - Michele Caggana, Scd, FACMD; Status of ALD Screening in California - Bob Currier, Phd