NewSTEPs Long-Term Follow-Up Feasibility Pilot Informational Webinar

The Newborn Screening Technical assistance and Evaluation Program (NewSTEPs), a program at the Association of Public Health Laboratories (APHL), is assessing a set of long-term follow-up (LTFU) process measures to evaluate their validity, relevance, and feasibility for use by state and territorial newborn screening (NBS) programs. This effort aims to determine whether these measures can support consistent data collection and help inform ongoing monitoring for individuals identified through NBS.